Vice President of The Ambassadors’ Club of Israel, Yoram Naor organized to send lifesaving epilepsy medicine to children in The Ukraine. He assisted Operation Mordechai from Florida, USA, Brothers Brother aid organization from America alongside Sar El Medical Supply, Israel, which is a member of The Ambassadors’ Club of Israel, to send this medication to 103 children who previously did not have access to it.
Below are the words of Svetlana Faktorovich who made this humanitarian aid possible.
“I am a Ukrainian-American Neurologist and founding member of the Ukraine Neurology Initiative, a collaborative effort between the Brothers Brother Foundation and neurologists around the US to support epilepsy needs in Ukraine. Working with our neurology colleagues on the ground in Ukraine, we are able to distribute medications directly to patients in need at home.
There are 103 children in Ukraine dependent on the medication you provided us, Vigabatrin, used to treat Infantile Spasms, a very dangerous form of childhood epilepsy, Tuberous Sclerosis Complex as well as other refractory forms of epilepsy. Unfortunately, due to its controlled nature in the US under the REMS program and severe supply shortage worldwide, it has been unavailable for purchase in the US, Canada and Europe for the last 7 months. Furthermore, epilepsy therapies have not been prioritized by humanitarian organization prior to this war, and we are one of the few groups around the world supplying them.
With your [Yoram Naor] help, along with Sar El and Melanie Kelfer, President of Operation Mordechai, we were able to purchase 30,000 doses of Vigabatrin within days of sending you the request. That is enough to supply those 103 children with more than 3 months of lifesaving medication. The medication successfully arrived to Lviv on September 28, 2022, and was distributed to the children in need over the next few days.
During the darkest time for these children, your [Yoram Naor] compassion and hard work brought back light into their lives. Without appropriate medication , their conditions often result in irreversible brain injury or death. I truly cannot express my appreciation enough.”
-Svetlana Faktorovich, MDNeurologist, Marcus Neuroscience Institute, Boca Raton, FLAssistant Professor, Florida Atlantic University School of Medicine, Boca Raton, FL
Board of Trustees, Brother’s Brother Foundation